I’ve been trying to write a blog post since June. Mostly because I want you to know that Mia is stable; she’s feeling quite well. The humidity of the Summer & September really had a terrible effect on her, we were so thankful when it was finally finished. It’s an awful feeling when all you can do is sit by as the humidity relentlessly makes every single one of her PH symptoms go from bad to worse. I’m hoping with the end of summer that these feelings of anger and jealousy will go away as well. Yes, I admit it, I’ve felt that way. Sometimes I do feel sorry for myself as I grieve for the life that I thought we’d have. And yes, it is often hard to be on the outside looking in at everybody else out enjoying the warmth, the water, the beach and everything else that makes summer so great; ’cause we weren’t. I’m sure that I’ll feel differently time, but right now I don’t. Right now it just sucks. So, what were we doing?
We were carrying Mia up the stairs to avoid the chest pains she suffers when she walks up the stairs by herself. And we trying to avoid the heart palpitations that were so thunderous I didn’t even have to be touching her skin to feel them. We were also trying to adjust and live thru my being diagnosed with BiPolar Disorder, PTSD, Anxiety & Chronic Depression. I now have 4 more reasons to hate PH; They say my diagnoses are a result of Mia’s diagnosis. And trust me, developing and living with a mental illness is no picnic for me or my family. This summer was tough and it was only with help and support that we survived it at all. Truth is we were struggling in every single way possible; We Still Are.
Hey, did you know just how much our mental health system sucks! Well it does. It’s impossible to get anywhere; especially without a psychiatrist. Apparently there’s a shortage of them province wide. In York Region there’s not even a wait list to ask to be put on! Personally I think it’s horrendous but even more so, it’s dangerous (and more than a little scary)
On a brighter note: Mike deserves a Metal AND a Big Shiny Trophy for continuing to do literally everything to keep our heads above water. The most important thing to him is us; individually, as a couple and as a family. My man is amazing and he impresses me everyday. I can truly say he’s my Hero, my Prince Charming & my White Knight all rolled into one. Where would I be without My Mikey, he rescues me Daily and without him, I’d be nowhere.
Oh!! And no one is sleeping around here either… like Ev-er! But on the positive side: We’ll look like real Zombies just in time for Halloween!
So there’s your update. It’s not frilly or exciting… but it’s honest 💜