Both Sides

I’m gonna share some texts between my and my mama last nite…she is in Florida with Allie… eeeeeeeeven tho I know she would rather be here. I can’t say I blame her, I don’t like being more that 5 minutes away from Mia, either. But to be honest,  I’m not sure she completely understands the priceless gift she has given my youngest daughter. 


Me: Aaaaaaand we just had to wake her up outta bed and do a second site change!! Oh ain’t life grand!

Mama: Why?

Me: It was too itchy. And when we moved it the first time today, and then tagadermed it, there was oozing from the old site (which as per instruction, of course was quite close to the new one) 

Mama: Poor Mia (and mommy)

Me: My heart just breaks for her!! The sheer panic that comes across her face when she gets told she has to have a site change. It’s heartbreaking. There’s no other way to describe it. And *I* had to make her feel that way TWICE today – I get to be the asshole who did that to her – not once, but TWO times today.

Mama: But you were a good mommy to have noticed! Totally sucks though.

Me: I miss you. I can’t believe it’s only Tuesday!

Mama: I miss you too, I had just counted how many sleeps before I could come home. Not sure I want to travel anymore. However Allie is having a great time. 

Me: I can’t say I blame you. I can only imagine how far away you must feel. How’s your anxiety level? 

Me: You are giving Allie the most wonderfully precious gift. Not sure we’ll get to take vacations like that anymore. Thank you xx


So while we’re at home doing this:  

Allie is in Florida doing this: 

Mia and I were supposed to join this trip, too…  but Mia has yet to be cleared safe to fly. So that’s now TWO vacations that have been cancelled for Mia. We just couldn’t do that to Allie – AGAIN!

Auntie Mandy, Kate (Finn and Charlotte) and of course my Mama… Thank you for giving Allie the time of her life, something special; just for her. I know it’s hard to be so far away, but you have no idea how much we appreciate the sacrifice you’ve made, for her. I hope Allie will remember this trip forever. Because realistically, we really don’t know if we’ll be able to take vacations like that anymore. 

It’s true what they say – when one member of the family gets diagnosed with Pulmonary Hypertension, the whole PHamily is affected, and every life is changed. 

Oh, and as a side note… here’s my tiny ferocious panther of a kitty 😳


3 thoughts on “ Both Sides

  1. So glad Allie is able to be on the trip and that she has such WONDERFUL people with her! She is in great hands…and those hands will be home soon which will be comforting to all!

    Liked by 1 person

  2. Good for you sending Allie! This is a good thing. So often when I was teaching I saw the sib of the sick or handicapped child end up being just as handicapped themselves by the limitations of the sick sib. Allie needs to live as normal a life as possible. That doesn’t mean she shouldn’t help sometimes but she shouldn’t be the go-to kid for constant help and entertainment for her sis if you get my drift. I mean she needs to learn compassion too but it’s a fine line and a really hard one to balance. It looks like you’re really doing great by both of them!
    On a side thought; you are so lucky to have a mum like yours. What a rock for you!

    Liked by 1 person

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